Personal Story Day, read more.
A small focus on lisch nodules, and my feelings about my eyes. As stated in the Day 3 post, lisch nodules are tumors that develop on the surface of the eyes. They are benign, and do not cause pain.
Lisch nodules happen to be one of the few things I actually don’t mind about having NF—in fact, I kind of like how they make my eyes look. I have blue eyes, which I adore, and the lisch nodules add several dimensions of color to my eyes that wouldn’t be present otherwise. Browns, yellows…I think they make my eyes more beautiful.
That being said, NF has taken time to “grow into”—For a long time I harbored a lot of shame and resentment about myself because I have this illness. Now I know, however, that there is nothing to be ashamed of, and nothing to hide. I am me, NF is and always will be part of who I am.
People I have met through the research protocol I am part of have helped me to grow stronger, and to realize that NF doesn’t define who I am.